Walking has become a little less appealing because Ian cannot balance as well as he could. His OT recommended he get a mini bike! This week, Ian not only received his weekly occupational therapy session, but he also put his legs to work. He wants to build up to 6km a day.
Ian has lost the avbility of his legs to stand/walk. This has meant that Fiona has had to physically move him using a transfer board and sheets and pulling on his clothing. He also battles to swallow so a simple thing like swallowing saliva is not so simple any more. It’s been a tough time…
The progression is always at play but keeping calm is not always easy. For example, as the muscles in Ian’s tongue and throat change shape and/or weaken swallowing and speaking becomes more of an effort than it was. Water on its own can be dangerous and cause Ian to choke, but water with a bit…
Ian’s muscles in his shoulders are not what they used to be and this means sleeping is rather uncomfortable as it feels like his bones are digging into the bed base, rather than the mattress. In recent weeks, Ian has been sleeping on a sheep’s skin which did bring relief but now his hips are…
One of the most common problems that affects people with motor neuron diseases is called dependent edema. This is swelling of the hands and feet which gradually extends upwards into the arms and legs. This is caused because veins depend on muscle movement to return blood and fluid to the heart. Without the muscle movement,…
Since Ian received hormone treatment for his enlarged prostate and after the prostate scraping to remove cancerous bits earlier in 2023, he has had to have regular blood tests to monitor his PSA levels. Unfortunately, the last screening resulted in his PSA levels being too high. Ian’s urologist has started hormone treatment once again. He…
For most people with MND the intellect and memory are not affected, nor are the senses of sight, hearing, taste, smell and touch. Ian’s legs are getting weaker, this means the joy of walking has become no more. Each step is a struggle and a worry as to when he might fall. Ian has become…
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